Our team has a shared goal to realize 1 billion lifesaving connections by 2025.

We are determined and unstoppable.

Our Mission

To empower every patient on the globe to find their cure 

Our story 

Born in a medical family specialized in genomics I experienced first-hand that there is more knowledge about genomics to save lives. I became a neuroscientist specialized in genomics at Harvard aiming to find a cure for one of the worlds most deadliest diseases. Until I realized that by using technology we can make  lifesaving information accessible for everyone,  save millions of lives and improve survival chances for all next generations to come. This inspired me to start SocialGenomics, a MOONSHOT to empower every patient on the globe to find their cure. 

Picture: Susanne Baars, Founder

Our story 

Born in a medical family specialized in genomics I experienced first-hand that there is more knowledge about genomics to save lives. I became a neuroscientist specialized in genomics at Harvard aiming to find a cure for one of the worlds most deadliest diseases. Until I realized that by using technology we can make  lifesaving information accessible for everyone,  save millions of lives and improve survival chances for all next generations to come. This inspired me to start SocialGenomics, a MOONSHOT to empower every patient on the globe to find their cure. 

Picture: Susanne Baars, Founder

Our Vision

The experience of every patient is a powerful legacy. Each patient’s story has the unique potential to save someone else’s life. Because what we know or who we know can save lives. The story of every patient teaches us something new about the way diseases work, how they are treated and help all people with a similar diseases to find more effective treatments, and potentially a cure faster.

At SocialGenomics, we believe that learning from the experience of every patient is an imperative — it is the key to create access to lifesaving information for everyone. By sharing experiences on a global level we can help each other to save lives. SocialGenomics introduces the start of a new era in which every person can be part of solving diseases. What stands in the way is an giant technology challenge: due to localised healthcare practices patients with similar conditions, loved ones, doctors and scientists specialised in specific conditions cannot find each other on a global level. It is a problem that we believe we can solve.

What SocialGenomics Community says

“This sounds like a dream come true. If this would have been here 5 years ago, my mother might still have been alive today”
– Lina, a daughter

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“I got shivers up my spine. Having a rare disease can be extremely challenging and facebook groups are not the best place to exchange info with the “comrades”. It Really got me.”

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“When you have a disease you want to share knowledge.”

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“SocialGenomics improves the information exchange globally.” 

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“A lifesaving initiative and surely one that provides us with much needed information.”

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“While others talk about fear, SocialGenomicsstands for hope and opportunity”

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“I love the drive, the social aspect and the fact that SocialGenomics does it for patients”

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“I’m inspired how they are creating a paradigm shift so that all those (too) small numbers of people with a rare disease can find hope and possibly a cure.”

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“This is more than just an app for a business sake, ittspotentially a tremendously valuable tool to rapidly advance research by empowering patients – those most invested in finding research solutions to be part of the solution.”

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A global community build on trust.

It all starts with trust  

SocialGenomics is a global mission driven company founded based on purpose. Our intentions and drivers are to help as many people as possible. We are honest, open, authentic.

Innovation through listening 
All our team members are intrinsically motivated, determined, passionate, eager to learn and caring. We want to explore. We think differently. We have the courage to think big and to try. We choose to build this future. We believe that with the power of everyone joining SocialGenomics, together we can save many lives. We believe that every process should start with the customer and work backwards. So that’s what we are doing! 

We work side by side with patients and scientists as part of our culture. An independent ethics board is safeguarding good ethics of all the science (partners) we engage with.

 We are also passionate about your security and privacy 
The technology we built is 100% people centric and made to empower as many patients, loved ones and scientists all over the world. We are using proven technology that is designed according to the highest security and privacy standards. To make sure that our technology matches our claim we are performing regular audits through established organisations. We are transparent, open and provide you full autonomy over your data.

Our badges of honor.

Privacy above all else

Privacy is the number 1 priority and we leave no stones unturned to make sure your data is yours.

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Highest level security

Leave all concerns about security aside. We make sure your data is safe and secure.