Find your cure faster together 

Using cutting-edge technology to connect rare diseases and cancer patients, loved ones and passionate scientists to find cures and save millions of lives!

 

 

 

 

What you know and who you know can save lives.

Using cutting-edge technology to connect rare diseases and cancer patients, loved ones and passionate scientists to find cures and save millions of lives!

 

 

 

 

 Healthcare systems are failing 
Imagine, you are diagnosed with a rare and life threatening disease. Your doctor has never seen your case before. Maybe there is a cure at the other side of the world… But how do you know? Globally millions of people are dying because they cannot find the information they need, in the little time they have. Isn’t that insane, living in 2019? At SocialGenomics we believe that every person deserves access. We also believe that learning from the experience of every patient is an imperative — it is the key to create access to lifesaving information for everyone. What stands in the way is a giant technology challenge: due to localized healthcare practices people cannot find each other. It is a problem that we believe we can solve.

Our MOONSHOT mission

Empowering every patient in the world to find their cure. We believe that every person deserves access to the support and personal care they need. 

A lifesaving community 

Find others in the world 

Connect with people to support, provide hope and to motivate each other to overcome diseases.

 

 Share lifesaving information 

Share and easily access lifesaving information about treatments, expert doctors and trials worldwide.

Help groundbreaking research

Help passionate researchers to understand your patient journey and to develop personalized treatments.

What you know can save a life. 

400M+
Rare Disease Patients
Worldwide

3.4M
Rare cancer cases diagnosed / year

1000
People strong today

The most dynamic global community

The experience of every patient is a powerful legacy. Each  story has the unique potential to save someone else’s life. We invite every patient, loved ones, supporters and passionate scientists to help each other find new cures and accelerate medical breakthroughs.

 

Why?

  • Connect with other people 
  • Share lifesaving information
  • Help researchers to find new cures faster  

    Our goal is to realize 1 billion lifesaving connections before 2025. 

Saving lives, through connectivity  

Two 7-year old girls with the same rare brain tumor. Six months later only Anne goes back to school, Sophie died. The difference? By chance Anne’s parents connected to a US doctor working on an experimental medicine. Sophie’s parents did not have this connection. This story represents a gap in today’s  localized healthcare practices. Millions of people are dying because of diseases we can cure, we find this unacceptable!

 

Anne survived.

Sophie died.

connecting with Anne could have saved her life

What SocialGenomics community says